Posted on November 6th, 2025.

Words matter. The language we use to describe Alzheimer’s shapes how we think about it—and, more importantly, how we treat those living with it. Too often, Alzheimer’s is framed in fear-based language: a thief, a tragedy, the long goodbye. While these phrases reflect the emotional weight of the disease, they can also strip away dignity and reinforce stigma.

How Language Shapes Perception

The words we choose don’t just describe reality—they shape it. When Alzheimer’s is described solely as a loss, it makes it harder to see the humanity, strengths, and emotions that remain in those living with it. Shifting the narrative to focus on connection, ability, and dignity can make a profound impact.

✔ Instead of “She’s lost to us,” try “She experiences the world differently now.” 

✔ Instead of “He doesn’t remember me,” try “He may not recall my name, but he still feels my presence.” 

✔ Instead of “It’s just a part of aging,” try “Alzheimer’s is a disease, not a normal part of getting older.”

Breaking the Stigma Around Alzheimer’s

Stigma keeps people silent. It makes families feel isolated. And it prevents individuals from seeking the support they need. By shifting the way we talk about Alzheimer’s, we can also shift the way we support those affected.

💜 Normalize conversation – The more we talk about Alzheimer’s openly, the more we break down the fear and misunderstanding surrounding it. 

💜 Highlight abilities, not just losses – People living with Alzheimer’s still have emotions, preferences, and meaningful moments. Let’s recognize those, too. 

💜 Acknowledge caregivers – Language should not just focus on the person with the disease but also on the caregivers who need support and appreciation.

The Power of Compassionate Communication

Alzheimer’s changes the way people process and respond to language. That means we, too, must adapt. Here are simple shifts that can create more positive interactions:

✔ Use reassuring words – A warm tone and simple, clear sentences help reduce anxiety. 

✔ Follow their lead – Meet them where they are, even if their reality differs from ours. 

✔ Validate emotions – Instead of correcting them, focus on offering comfort and connection.

Join the Conversation

💬 How have you seen language impact the way people perceive Alzheimer’s? Let’s discuss ways we can shift the conversation—together.

📖 Want to dive deeper? My new book Step Into Their World: Making Sense of Alzheimer’s explores how small language changes can make a big difference in supporting those living with Alzheimer’s and their caregivers.

🔗 Get your copy today: Step Into Their World: Making Sense of Alzheimer's

📢 Tagging incredible voices working to reshape Alzheimer’s awareness: @AlzheimersAssociation @DementiaFriendlyAmerica @TeepaSnow @AlzAuthors @TheAlzheimersExperience

#AlzheimersAwareness #CompassionateCare #EndAlz #TheAlzheimersExperience